The growing HIV/AIDS epidemic in Berks County, PA

Dawn Day, Ph.D.
December 1999

In 1998 there were over 380 persons living with HIV or AIDS in Berks county, Pennsylvania, and the number can be expected to expand in coming years, with the majority of new infections coming directly or indirectly from infected needles. 

Berks county had the fifth highest AIDS rate in Pennsylvania in 1996.(1)

Since 1995, the advances in AIDS treatment have reduced AIDS deaths dramatically in Berks county as well as elsewhere in the United States. In Berks, AIDS deaths have been reduced from a high of 49 in 1995 to 31 in 1997. 

But with falling AIDS deaths and a continuing steam of people progressing from HIV to AIDS, each year there are growing numbers of persons living with AIDS in Berks, as can be seen in Figure 1.


Looking at Figure 2, we can see the progression in number of persons living with AIDS in the years 1995 to 1998, and also get some sense of the wider epidemic, which includes both persons living with AIDS and with HIV. In 1998, over 380 persons living with HIV or AIDS were receiving services in Berks.(2) (See Attachment 1.)

Thirty eight percent of persons with HIV/AIDS receiving services in Berks county during the period 1988 to 1998 had been infected through dirty needles. Over the period, the number served who were injecting drug users grew gradually until in 1998, persons infected through dirty needles were 45 percent of all persons receiving HIV/AIDS services in Berks. 

Persons infected through heterosexual sex grew from an average of 27 percent of all persons served in 1988 through 1998 to 31 percent of all persons served in 1998. Most persons infected through heterosexual sex were infected because they were the wives, husbands or significant others of current or former injecting drug users.(3)

Sixty five percent of the injecting drug users receiving services in Berks county in 1998 were white. (See Attachment 2.)


High priority in Berks: Prevention of drug-related HIV
With substantial numbers of persons infected either directly or indirectly through the use of HIV-infected needles, AIDSNET Coalition, the regional planning group for AIDS in Berks and surrounding counties, has made HIV prevention among injecting drug users and their sexual partners is a high priority.(4)  An HIV prevention technique that could be very effective in Berks county is needle exchange.

Secretary of Health and Human Services, Donna E. Shalala has pointed to the careful scientific research showing that needle exchange programs successfully slow the spread of HIV and do not increase drug use. The American Medical Association and other major health organizations have called for needle exchange programs as part of HIV prevention.(5)


The low cost of clean-needle programs
Preventing the spread of HIV through needle exchange costs much less than treating HIV/AIDS after a person is infected. Using sophisticated mathematical models, a University of California team of investigators estimates that, over a five-year period, it costs between $4,000 and $12,000 in needle-exchange program expenses for each HIV infection averted.(6)  The cost of medicine for antiretroviral therapy for that same five-year period would be $60,000. One recent estimate puts the cost of antiretroviral therapy at over $17,000 for a single year!(7)  If we add in doctors' fees and hospitalization, the cost difference between prevention and treatment would be even greater.

Attachment 1.  Persons with injection-related HIV/AIDS
are the largest group of persons receiving services in Berks County

  Number of persons served Percent
Persons receiving services 1998 Aug. 1988 to Dec. 1998 1998 Aug. 1988 to Dec. 1998
Transmission mode
     Men who have sex with men 78 319 20 29
     Injecting drug users 171 416 45 38
     Heterosexual contact 120 295 31 27
     Receipt of blood or tissue 0 28 0 3
     Other 12 38 3 3
     Total 381 1096 100 100
Sex
     Male 250 783 66 71
     Female 131 313 34 29
     Total 381 1096 100 100
Prepared by the Dogwood Center, Princeton, NJ, using data from the Berks AIDS Network, Reading, PA.  Berks AIDS Network is the only organization in Berks County providing Ryan-White-funded HIV/AIDS case management services.


Attachment 2. AIDS and Race/Ethnicity in Berks County, PA, in 1998


HIV/AIDS cases by race (African American and white)
In 1998, 65 percent of all persons who had injection-related HIV/AIDS and received services in Berks County were white.  However, since whites are such a large proportion of the county population (94 percent in the 1990 census), this means that injection-related HIV/AIDS was not as widespread among whites as among other groups.

In 1998, 35 percent of all persons who had injection-related HIV/AIDS and received services in Berks County were African American.  Since African Americans are such a small proportion of the county population. (3 percent in the 1990 census), this means that injection-related HIV/AIDS was much more widespread among African Americans than among other groups.

HIV/AIDS cases by Latino and nonLatino
In 1998, 39 percent of all persons who had injection-related HIV/AIDS and received services in Berks County were Latino.  Since Latinos are a relatively small portion of the county population (5 percent in the 1990 census), this means that injection-related HIV/AIDS was much more widespread among Latinos than among non-Latinos.(8)

 

  

Footnotes
(1) Information on new AIDS in 1996 occurring outside prisons in Pennsylvania by county were provided by the Division of Health Statistics, Pennsylvania Department of Health, Harrisburg, Pennsylvania. The Department specifically disclaims responsibility for any analyses, interpretations or conclusions. The county population estimates were for 1997 and were from the U.S. Census Bureau. 
(2) Although the Berks AIDS Network data are the best figures available, the reader needs to be aware that the figures on persons being served substantially understate the extent of HIV disease in the county. AIDSNET estimates that there are as many HIV/AIDS-infected persons who ARE NOT receiving services in Berks county as there are HIV/AIDS-infected persons who are receiving services. See The 1999-2000 AIDSNET Coalition Regional Services and Strategic Plan. Nov. 15, 1998. p. 16. AIDSNET is the Pennsylvania Dept. of Health regional planning body for HIV/AIDS services in the 6-county area including Berks.
(3) Nationally, in 1998, in cases of heterosexual transmission where the exposure group of the infecting partner was known, 85 percent of all cases involved the sexual partners of injecting drug users. It seems reasonable to assume that the situation in Berks is similar to that nationally in this regard. Centers for Disease Control. HIV/AIDS Surveillance Report. U.S. HIV and AIDS cases reported through December 1998.
(4) The 1999-2000 AIDSNET Coalition Regional Services and Strategic Plan. Nov. 15, 1998. p. 25.
(5) Secretary Donna E. Shalala, U.S. Dept. of Health and Human Services, made this point in a press release "Research shows needle exchange programs reduced HIV infections without increasing drug use," April 20, 1998. National Research Council and Institute of Medicine, Jacques Normand, David Vlahov, and Lincoln E. Moses, eds., Preventing HIV Transmission: the Role of Sterile Needles and Bleach. National Academy Press, 1995. Statements by the American Medical Association and other major health associations supporting needle exchange, 
(6) National Research Council and Institute of Medicine, Jacques Normand, David Vlahov, and Lincoln E. Moses, eds., Preventing HIV Transmission: The Role of Sterile Needles and Bleach. Washington, DC: National Academy Press, 1995, pp. 86-88.
(7) A recent study by Caro Research, an independent consulting firm in Massachusetts, showed that highly active antiretroviral therapy, using 3 to 4 drugs costs $17,600 a year.  Reuters. "It costs $17,600 a year to treat HIV in U.S.-study." September 27, 1999.
(8) In the data reported here, information on race (white, black, Asian, other) was collected separately from information on Latino, non-Latino status.  This means that in the data reported by race, some Latinos have been included as white and some as black.  Similarly, in the Latino statistics, Latinos include both people who consider themselves white and people who consider themselves black.  Thus, the proportion of injection-related AIDS cases among African Americans and Latinos cannot be added together to get a proportion of all injection-related AIDS cases in Berks County involving persons of color.  The 1998 AIDS service data are from the Berks AIDS Network, Reading, PA.  The 1990 census data for Berks county were taken from The 1999-2000 AIDSNET Coalition Regional Services and Strategic Plan,  Nov. 15, 1998.  p.7.